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已发表论文
肺结核患者疾病体验和未满足需求：基于症状体验模型的整合性研究
Authors Yang Y, Yu Q, Zhao X, Yao R, Shen J, Jiang S, Yang X, Wan B
Received 6 September 2025
Accepted for publication 28 January 2026
Published 12 February 2026 Volume 2026:20 565692
DOI https://doi.org/10.2147/PPA.S565692
Checked for plagiarism Yes
Review by Single anonymous peer review
Peer reviewer comments 2
Editor who approved publication: Dr Johnny Chen
Yulan Yang,1,2,* Qiaolin Yu,3,* Xia Zhao,1 Rong Yao,3 Jing Shen,2 Shasha Jiang,2 Xiaoyi Yang,3 Bin Wan1
1The Department of Nursing, Public Health Clinical Center of Chengdu, Chengdu, Sichuan, People’s Republic of China; 2College of Nursing, Chengdu University of Traditional Chinese Medicine, Chengdu, Sichuan, People’s Republic of China; 3The Department of Tuberculosis, Public Health Clinical Center of Chengdu, Chengdu, Sichuan, People’s Republic of China
*These authors contributed equally to this work
Correspondence: Bin Wan, The Department of Nursing, Public Health Clinical Center of Chengdu, Chengdu, Sichuan, People’s Republic of China, Tel +86 13881956592, Email 673971566@qq.com
Purpose: Patients’ illness experiences and needs are central to pulmonary tuberculosis management and have important implications for treatment engagement and health outcomes. This study addresses this gap by systematically synthesizing qualitative evidence to provide a comprehensive understanding of pulmonary tuberculosis patients’ illness experiences and unmet needs, guided by the Symptom Experience Model.
Methods: PubMed, Web of Science, Embase, PsycINFO, CINAHL, ProQuest, the Cochrane Library, CNKI, VIP, Wanfang, and SinoMed were searched from inception to December 2024 for qualitative or mixed-methods studies on the illness experience of pulmonary tuberculosis patients. Studies were screened and appraised using the Joanna Briggs Institute Critical Appraisal Checklist for Qualitative Research. Meta-integration techniques were used for synthesis. The Symptom Experience Model provided the interpretive framework for analysis. This review followed PRISMA 2020 guidelines for reporting systematic reviews. The PROSPERO registration was dated July 24, 2024 (Registration Number: CRD42024572729).
Results: Twenty-one studies were included, comprising a total of 469 participants. A total of 36 themes were identified, grouped into nine descriptive categories and synthesized into two overarching findings. First, patients experience complex illness-related challenges, including physical symptoms, psychological distress, disrupted social roles, uncertainty about the future, and, in some cases, post-traumatic growth. Second, multiple unmet needs were identified, including inadequate health education, insufficient emotional support, stigma, barriers to healthcare access, and lack of socioeconomic support. While the Symptom Experience Model helped explain symptom perception and coping behaviors, it was less effective in addressing structural determinants such as poverty and systemic stigma.
Conclusion: Pulmonary tuberculosis causes profound suffering shaped by both individual responses and wider social contexts. Interventions should address emotional and cognitive processes, strengthen social support, and consider patients’ lived realities. The Symptom Experience Model could be expanded to better reflect socioecological influences.
Keywords: tuberculosis, narrative medicine, health services needs and demand, qualitative research
1The Department of Nursing, Public Health Clinical Center of Chengdu, Chengdu, Sichuan, People’s Republic of China; 2College of Nursing, Chengdu University of Traditional Chinese Medicine, Chengdu, Sichuan, People’s Republic of China; 3The Department of Tuberculosis, Public Health Clinical Center of Chengdu, Chengdu, Sichuan, People’s Republic of China
*These authors contributed equally to this work
Correspondence: Bin Wan, The Department of Nursing, Public Health Clinical Center of Chengdu, Chengdu, Sichuan, People’s Republic of China, Tel +86 13881956592, Email 673971566@qq.com
Purpose: Patients’ illness experiences and needs are central to pulmonary tuberculosis management and have important implications for treatment engagement and health outcomes. This study addresses this gap by systematically synthesizing qualitative evidence to provide a comprehensive understanding of pulmonary tuberculosis patients’ illness experiences and unmet needs, guided by the Symptom Experience Model.
Methods: PubMed, Web of Science, Embase, PsycINFO, CINAHL, ProQuest, the Cochrane Library, CNKI, VIP, Wanfang, and SinoMed were searched from inception to December 2024 for qualitative or mixed-methods studies on the illness experience of pulmonary tuberculosis patients. Studies were screened and appraised using the Joanna Briggs Institute Critical Appraisal Checklist for Qualitative Research. Meta-integration techniques were used for synthesis. The Symptom Experience Model provided the interpretive framework for analysis. This review followed PRISMA 2020 guidelines for reporting systematic reviews. The PROSPERO registration was dated July 24, 2024 (Registration Number: CRD42024572729).
Results: Twenty-one studies were included, comprising a total of 469 participants. A total of 36 themes were identified, grouped into nine descriptive categories and synthesized into two overarching findings. First, patients experience complex illness-related challenges, including physical symptoms, psychological distress, disrupted social roles, uncertainty about the future, and, in some cases, post-traumatic growth. Second, multiple unmet needs were identified, including inadequate health education, insufficient emotional support, stigma, barriers to healthcare access, and lack of socioeconomic support. While the Symptom Experience Model helped explain symptom perception and coping behaviors, it was less effective in addressing structural determinants such as poverty and systemic stigma.
Conclusion: Pulmonary tuberculosis causes profound suffering shaped by both individual responses and wider social contexts. Interventions should address emotional and cognitive processes, strengthen social support, and consider patients’ lived realities. The Symptom Experience Model could be expanded to better reflect socioecological influences.
Keywords: tuberculosis, narrative medicine, health services needs and demand, qualitative research